HB 1383: Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

PUBLIC RECORDS/GENERAL BILL by Franklin

Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Provides exemption from public records certain information contained in public report published by DOH relating to experimental treatment outcomes & safety signals; provides statement of public necessity.

Current Bill Version Posted: 1/9/2026 12:46 PM

• Related Bills (3)

  Bill Number Subject Filed By Last Action and Location	Relationship Learn more about bill relationships
  H 1381 by Franklin Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Linked
  S 1554 by Burgess Public Records/Experimental Treatment Outcomes Last Action: 3/13/2026 S Died in Health Policy	Identical
  S 1552 by Burgess Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 S Died in Health Policy	Compare

• Citations - Statute (1)

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  499.0295

  Experimental treatments for terminal conditions.

  Page 1 (pdf)

• Bill History

  S = Senate, H = House

  1/9/2026	H	• Filed
  1/13/2026	H	• 1st Reading (Original Filed Version)
  1/15/2026	H	• Referred to Health Professions & Programs Subcommittee • Referred to Government Operations Subcommittee • Referred to Health & Human Services Committee • Now in Health Professions & Programs Subcommittee
  3/13/2026	H	• Died in Health Professions & Programs Subcommittee