HB 1381: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

GENERAL BILL by Franklin

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Authorizes licensed physicians to prescribe & eligible facilities to administer experimental treatments; requires approval of specified platform or master protocol by institutional review board; requires DOH to establish & maintain patient registry; requires DOH to annually publish specified report; encourages health insurers & health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizes licensed physicians & eligible facilities to receive reimbursement for experimental treatments; requires manufacturers of experimental treatments to provide for specified temporary price concession; requires DOH to adopt by rule certain procedures for licensing of experimental treatment centers.

Current Bill Version Posted: 1/9/2026 12:37 PM

• Related Bills (5)

  Bill Number Subject Filed By Last Action and Location	Relationship Learn more about bill relationships
  H 1383 by Franklin Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Linked
  H 1385 by Franklin Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Linked
  S 1552 by Burgess Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 S Died in Health Policy	Identical
  S 1554 by Burgess Public Records/Experimental Treatment Outcomes Last Action: 3/13/2026 S Died in Health Policy	Compare
  S 1556 by Burgess Experimental Treatment Access Trust Fund/Department of Health Last Action: 3/13/2026 S Died in Health Policy	Compare

• Citations - Statute (1)

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  499.0295

  Experimental treatments for terminal conditions.

  Page 3 (pdf)

• Bill History

  S = Senate, H = House

  1/9/2026	H	• Filed
  1/13/2026	H	• 1st Reading (Original Filed Version)
  1/15/2026	H	• Referred to Health Professions & Programs Subcommittee • Referred to Health Care Budget Subcommittee • Referred to Health & Human Services Committee • Now in Health Professions & Programs Subcommittee
  3/13/2026	H	• Died in Health Professions & Programs Subcommittee