SB 1552: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

GENERAL BILL by Burgess

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Citing this act as the “Promising Pathways Act"; authorizing licensed physicians to prescribe and eligible facilities to administer experimental treatments, if certain requirements are met; requiring the Department of Health to establish and maintain a patient registry for specified purposes; encouraging health insurers and health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizing licensed physicians and eligible facilities to receive reimbursement for the prescription or administration of experimental treatments if certain requirements are met; requiring manufacturers of experimental treatments to provide for a specified temporary price concession set by the department, etc.

Current Bill Version Posted: 1/9/2026 08:26 AM

• Senate Committee References (3)

  1. Health Policy (HP)
  2. Appropriations Committee on Health and Human Services (AHS)
  3. Appropriations (AP)

• Related Bills (5)

  Bill Number Subject Filed By Last Action and Location	Relationship Learn more about bill relationships
  S 1554 by Burgess Public Records/Experimental Treatment Outcomes Last Action: 3/13/2026 S Died in Health Policy	Linked
  S 1556 by Burgess Experimental Treatment Access Trust Fund/Department of Health Last Action: 3/13/2026 S Died in Health Policy	Linked
  H 1381 by Franklin Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Identical
  H 1383 by Franklin Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Compare
  H 1385 by Franklin Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Last Action: 3/13/2026 H Died in Health Professions & Programs Subcommittee	Compare

• Citations - Statute (1)

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  499.0295

  Experimental treatments for terminal conditions.

  Page 3 (pdf)

• Bill History

  S = Senate, H = House

  1/9/2026	S	• Filed
  1/16/2026	S	• Referred to Health Policy; Appropriations Committee on Health and Human Services; Appropriations
  1/22/2026	S	• Introduced
  3/13/2026	S	• Died in Health Policy